Finding a Specialist

Why Do You Need a Specialist?

• Pulmonary hypertension is a rare disease. Your primary care provider is less likely to have experience treating someone with a rare disease.
• There are different types of PH. It is important for you to know exactly what type of PH you have so that you get the treatment that is right for you.
• When you are treated by a specialist you will have access to the latest treatment options based on guidelines specialists closely follow.

What Can a Specialist Do for You?

• Review your medical records and the past medical tests you have had.
• Order additional tests if needed to confirm your diagnosis and help plan your course of treatment.
• Provide you with a treatment plan that is tailored to meet your individual needs.
• Slow disease progression by closely monitoring your symptoms and adjusting your treatment plan as needed. 
• Provide support options to help you best manage your disease.
• Share information on clinical trials that may be right for you.

How Do You Find a Specialist?

• Talk to your primary healthcare provider to see if they have a PH specialist that they recommend.
• Find a specialist near you. The Pulmonary Hypertension Association has an easy-to-use tool to search for a doctor or find a PH accredited care center.

Preparing for Your First Visit to the Specialist

You may feel overwhelmed going to a specialist for the first time; however, preparing for your visit can help you learn how to best manage your disease. You can get the most from your appointment by taking these steps.

• Share important information with your specialist including your medical and family history
• Write down the questions you want answers to so you don’t forget or can simply hand the list to the specialist.
• Consider bringing a trusted family member or friend with you to the appointment. 
• Advocate for yourself or ask the support person you brought with you to help ensure that your needs are being met and that your specialist understands your expectations.